Survey reveals lack of Parkinson's nurse specialists

More than a quarter of people in the UK with Parkinson's disease have never talked to a Parkinson's nurse specialist, a survey has shown.

In addition, 40 per cent of people with the condition had not spoken to a specialist nurse in the past 12 months, according to research carried out by the Parkinson's Disease Society.

The charity said there were approximately 120,000 people in the UK living with the condition, but only around 230 Parkinson's nurse specialist. This equates to an average caseload of 522 patients per specialist nurse, compared to a NICE recommendation of 300 patients per nurse, 

Lesley Carter, head of influence and service development at the Parkinson's Disease Society said: ‘Specialist nurses not only ensure patients are able to manage their symptoms effectively, they also offer the local health organisations opportunities to innovate how care is delivered.'

The charity added that having access to a Parkinson's nurse specialist who can help them manage their symptoms and provide them with information and support is seen as the number one priority for people with the disease.

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