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Social scientists at the University of York are to investigate public attitudes to the way medical information relating to hundreds of thousands of people is managed, particularly the rules governing third-party access to the data.
The UK Biobank involves collecting blood and urine samples, plus health and lifestyle information, from 500,000 people and relating it to subsequent disease, cause of death and other factors over a period of 30 years.
The use of data by third parties raises ethical questions.
www.ukbiobank.ac.uk
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