Parkinson’s Disease Society gives support to end of life planning

The Parkinson's Disease Society has launched a new booklet 'Planning for end of life for people with Parkinson's disease' to help people affected by the condition face the more challenging, advanced stages. 

Publication of the booklet, which includes a foreword by Esther Rantzen, coincides with the airing of an ITV drama on Sunday 8 October on ITV1. 'What we did on our holiday' stars Shane Ritchie, Roger Lloyd Pack and Pauline Collins and one of the main characters has advanced stage Parkinson's.  During the drama viewers witness the impact the condition has on the character with Parkinson's and on the relationships he has with his loved ones, as well as some of the difficult symptoms, which can emerge as the condition progresses.

Although Parkinson's is not itself terminal, it is a progressive, neurological condition for which there is currently no cure.  The later stages can be difficult, with wide variations in symptoms from day to day or even hour to hour.  This booklet aims to help people recognise the stage of advanced Parkinson's and to provide them with the information they need to find the help and support that is right for them.

Steve Ford, Chief Executive, Parkinson's Disease Society said: "The more advanced stages of Parkinson's disease can be extremely challenging and stressful and people often feel quite alone.  The Society doesn't believe anybody should feel isolated.  We hope that this publication will help in many ways, by pointing out what support is available and things to consider during the advanced stages of the disease.  We expect the booklet to be of use to people with the condition and their families as well as health and social care professionals."

To order a free copy of 'Planning for end of life for people living with Parkinson's disease' call 01473 212 115.

The PDS also runs a free phone national helpline [0808 800 0303 Monday – Friday 09:30am – 09:00 pm and Saturday 09:30am – 05:30pm] that provides advice and information to all people affected by Parkinson's.


Ref: 163/2006

For media enquiries, please contact Andrea Ttofa on 020 7963 9300 or email

For out of hours press enquiries: 07961 460 248

Notes for Editors:

About the Parkinson's Disease Society

There are approximately 120,000 people in the UK who have Parkinson's and 10,000 people are diagnosed with the condition every year.  The Parkinson's Disease Society (PDS) is the UK's leading authority on all aspects of the condition.  The charity campaigns for a better quality of life for people with Parkinson's.  The PDS provides field staff and local information and maintains 300 branches. 

Since 1969, the PDS has spent more than £30 million researching the causes, prevention, treatment and cure of Parkinson's disease. £3.4 million was spent in 2005 alone. The PDS also aims to improve the availability and quality of services locally and nationally, including the development of Parkinson's Disease Nurse Specialist posts across the UK.

The PDS runs a free phone national helpline [0808 800 0303 Monday – Friday 09:30am – 09:00 pm and Saturday 09:30am – 05:30pm] that provides advice and information to all people affected by Parkinson's.


Andrea Ttofa
Senior Media Officer
Parkinson's Disease Society of the United Kingdom
215 Vauxhall Bridge Road

Direct line: 020 7963 9300
Fax: 020 7233 9908

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