Just 2% of patients opt out of care.data, says minister

Less than one in 50 patients have exercised their right to opt out of having data from their GP patient record shared under the care.data scheme, a junior health minister has said.

Care.data: small number of patients opted out (Photo: JH Lancy)
Care.data: small number of patients opted out (Photo: JH Lancy)

Responding to a written question from shadow health minister Jamie Reed (Lab, Copeland), junior health minister George Freeman said 1.8% of patients had registered a 'type one' objection to their data being shared outside their GP practice 'for purposes other than their direct care'.

The figures quoted by Mr Freeman are based on data from 61% of practices involved in the care.data pathfinder programme. He said that the majority of practices had opt-out levels in the range from 0.5% to 2.5%, although some practices had higher rates.

Read more: What next for care.data?

Early last year, plans to launch the care.data scheme - which would have led to extraction of a huge range of patient data from GP records - were put on hold.

The decision came after widespread concerns from patient groups and GP leaders that patients had not been adequately informed or consulted about the implications of sharing their information and about their right to opt out.

GPs at the 2014 LMCs conference said that patient data should only be released outside GP practices with explicit consent.

Last year the information commissioner also ruled that GP practices would not be in breach of data protection rules if they chose to impose a blanket opt out of all their patients from the care.data scheme.

Have you registered with us yet?

Register now to enjoy more articles and free email bulletins

Register

Already registered?

Sign in

Follow Us:

Just published

NHS to pay doctors' pension tax in bid to end workforce crisis ahead of winter

NHS to pay doctors' pension tax in bid to end workforce crisis ahead of winter

The NHS could be set to pay doctors' pension tax bills in a move the BMA says could...

Scottish government unveils plan to ease pension tax crisis as BMA urges UK-wide action

Scottish government unveils plan to ease pension tax crisis as BMA urges UK-wide action

The Scottish government has unveiled plans to divert employer pension contributions...

Huge variation in time and money for GP-based teaching in medical schools

Huge variation in time and money for GP-based teaching in medical schools

UK medical schools are allocating vastly different amounts of time and money to GP-focused...

GP support for Conservatives and Labour slumps ahead of general election

GP support for Conservatives and Labour slumps ahead of general election

The proportion of GPs planning to vote Conservative or Labour has slumped compared...

First MDO completes switch to state-backed GP indemnity across England and Wales

First MDO completes switch to state-backed GP indemnity across England and Wales

The Medical Protection Society (MPS) has become the first of the three main providers...

GPs face unsustainable pressure, warns GMC report on doctors' wellbeing

GPs face unsustainable pressure, warns GMC report on doctors' wellbeing

GPs are working under intense and unsustainable pressure that has eroded their relationship...