First multilingual European information portal on hereditary angioedema (HAE) dedicated to physicians and patients

Frankfurt/M, Germany, November 19th, 2007. Information on the rare disease hereditary angioedema (HAE), its symptoms and treatment options is now available in five major languages on The international internet website offers doctors in-depth information on HAE, including scientific literature, conference calendar, reviews, all available contact data of HAE expert centres throughout Europe, consensus documents and case reports. Via a database service physicians can access relevant papers as PDF-documents direct via the publishers’ website. In addition, medical specialists can exchange know-how and experience by logging into the site’s multimedia learning sessions or by joining specialised forums. The international portal is available in English, French, German, Italian and Spanish.

Hereditary angioedema or HAE is a debilitating and potentially life-threatening genetic disease characterised by unpredictable recurring swelling attacks in the hands, feet, face and abdomen. Attacks that affect the larynx are life-threatening because they constrict the upper airways and can lead to death by suffocation. Experts estimate that between 1:10,000 and 1:50,000 people suffer from HAE. According to HAE expert Dr. Hilary Longhurst from St Bartholomew’s Hospital London about 1,200 patients in UK are affected by HAE, most of whom are undiagnosed.

“ is a great source of accurate, up-to-date information” says Hilary Longhurst. “I particularly appreciate the reference service. This will save physicians at my hospital many frustrating hours searching for full-text documents in the library.” In addition to the services for doctors, the new portal also offers patients a wide range of services and networking opportunities, including a search function to find HAE expert centres at home or in other European countries when travelling, a meeting calendar for patient conferences and access to all contact data, answers to frequently asked questions and direct access to websites of national and international patients’ organisations. facilitates national and international networking between physicians, scientists, patients and relatives’ caretakers. As a forum for continuous dialog the collects current knowledge and experience on HAE, with the aim of raising awareness and disseminating comprehensive information about hereditary angioedema. The website is sponsored and maintained by Jerini AG, Berlin/Germany.

This press release can be reproduced free of charge.           
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Press contact

Lorraine Walters

Synergy House

16 Petersham Road



TW10 6UW


Tel +44 (0)20 8948 8388 until 26 November 2007, then +44 (0)20 8334 2050

Fax +44 (0)20 8948 5883 until 26 November, then +44 (0)208 334 2052

Email: until 25 November, then

Jerini AG

George O’Rourke

20 Summerland ave.

W36ER London

Tel +44 (0)208 886 2608

Site web:

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