Hereditary angioedema or HAE is a debilitating and potentially life-threatening genetic disease characterised by unpredictable recurring swelling attacks in the hands, feet, face and abdomen. Attacks that affect the larynx are life-threatening because they constrict the upper airways and can lead to death by suffocation. Experts estimate that between 1:10,000 and 1:50,000 people suffer from HAE. According to HAE expert Dr. Hilary Longhurst from St Bartholomew’s Hospital London about 1,200 patients in UK are affected by HAE, most of whom are undiagnosed.
“HAE-Network.info is a great source of accurate, up-to-date information” says Hilary Longhurst. “I particularly appreciate the reference service. This will save physicians at my hospital many frustrating hours searching for full-text documents in the library.” In addition to the services for doctors, the new portal also offers patients a wide range of services and networking opportunities, including a search function to find HAE expert centres at home or in other European countries when travelling, a meeting calendar for patient conferences and access to all contact data, answers to frequently asked questions and direct access to websites of national and international patients’ organisations.
HAE-Network.info facilitates national and international networking between physicians, scientists, patients and relatives’ caretakers. As a forum for continuous dialog the HAE-Network.info collects current knowledge and experience on HAE, with the aim of raising awareness and disseminating comprehensive information about hereditary angioedema. The website is sponsored and maintained by Jerini AG, Berlin/Germany.
This press release can be reproduced free of charge.
Please supply a complimentary copy
Press contact
Lorraine Walters
Synergy House
16 Petersham Road
Richmond
Surrey
TW10 6UW
UK
Tel +44 (0)20 8948 8388 until 26 November 2007, then +44 (0)20 8334 2050
Fax +44 (0)20 8948 5883 until 26 November, then +44 (0)208 334 2052
Email: lorrainewalters@workhouse.co.uk until 25 November, then lorrainewalters@synergymedical.co.uk
Jerini AG
George O’Rourke
20 Summerland ave.
W36ER London
Tel +44 (0)208 886 2608
Email:orourke@jerini.com
Site web: www.jerini.com
Healthcare Republic does not have an editorial influence or input in to these press releases. The views expressed within these documents are not endorsed by Healthcare Republic or Haymarket Medical Publications Limited.
Enquiries should be directed to any contacts listed within the press releases.
