First multilingual European information portal on hereditary angioedema (HAE) dedicated to physicians and patients

Frankfurt/M, Germany, November 19th, 2007. Information on the rare disease hereditary angioedema (HAE), its symptoms and treatment options is now available in five major languages on The international internet website offers doctors in-depth information on HAE, including scientific literature, conference calendar, reviews, all available contact data of HAE expert centres throughout Europe, consensus documents and case reports. Via a database service physicians can access relevant papers as PDF-documents direct via the publishers’ website. In addition, medical specialists can exchange know-how and experience by logging into the site’s multimedia learning sessions or by joining specialised forums. The international portal is available in English, French, German, Italian and Spanish.

Hereditary angioedema or HAE is a debilitating and potentially life-threatening genetic disease characterised by unpredictable recurring swelling attacks in the hands, feet, face and abdomen. Attacks that affect the larynx are life-threatening because they constrict the upper airways and can lead to death by suffocation. Experts estimate that between 1:10,000 and 1:50,000 people suffer from HAE. According to HAE expert Dr. Hilary Longhurst from St Bartholomew’s Hospital London about 1,200 patients in UK are affected by HAE, most of whom are undiagnosed.

“ is a great source of accurate, up-to-date information” says Hilary Longhurst. “I particularly appreciate the reference service. This will save physicians at my hospital many frustrating hours searching for full-text documents in the library.” In addition to the services for doctors, the new portal also offers patients a wide range of services and networking opportunities, including a search function to find HAE expert centres at home or in other European countries when travelling, a meeting calendar for patient conferences and access to all contact data, answers to frequently asked questions and direct access to websites of national and international patients’ organisations. facilitates national and international networking between physicians, scientists, patients and relatives’ caretakers. As a forum for continuous dialog the collects current knowledge and experience on HAE, with the aim of raising awareness and disseminating comprehensive information about hereditary angioedema. The website is sponsored and maintained by Jerini AG, Berlin/Germany.

This press release can be reproduced free of charge.           
Please supply a complimentary copy 

Press contact

Lorraine Walters

Synergy House

16 Petersham Road



TW10 6UW


Tel +44 (0)20 8948 8388 until 26 November 2007, then +44 (0)20 8334 2050

Fax +44 (0)20 8948 5883 until 26 November, then +44 (0)208 334 2052

Email: until 25 November, then

Jerini AG

George O’Rourke

20 Summerland ave.

W36ER London

Tel +44 (0)208 886 2608

Site web:

Healthcare Republic does not have an editorial influence or input in to these press releases. The views expressed within these documents are not endorsed by Healthcare Republic or Haymarket Medical Publications Limited.

Enquiries should be directed to any contacts listed within the press releases.


Have you registered with us yet?

Register now to enjoy more articles and free email bulletins


Already registered?

Sign in

Follow Us:

Just published

Close up of hand holding sample tube with 'Omicron' handwritten on side

Government urged to 'free up' GP practices and expand steps to control Omicron

GPs have called for immediate action such as suspension of QOF to allow practices...

(Photo: Mike Kemp/Getty Images)

Coronavirus: Key guidance GPs need to know about COVID-19

GPonline provides an overview of the key guidance relating to coronavirus, including...

External wall of GP surgery with wording 'medical centre'

‘Utterly toxic’: GPs speak out over abuse and physical attacks on practice teams

GPs have condemned a rise in verbal and physical attacks on practice staff - warning...

Artist's image of a spiked virus

Javid warns of 'substantial risk' from new COVID-19 variant

The highly mutated COVID-19 variant B.1.1.529 'may pose a significant risk to public...

Desk with lettering 'LMC conference'

LMCs reject 'outdated' GMS contract and demand move to item of service payments

LMCs have voted to scrap the 'outdated and inadequate' GMS contract and to replace...

GPs at an LMC conference waving green voting cards in the air

LMCs demand ringfence on enhanced services cash and clear GP representation in ICSs

LMCs have called for a ringfence on enhanced services funding, along with a guarantee...