Concern over unrestricted access to patient records

Plans to allow researchers access to patient records without consent appear to have stalled, after a DoH consultation revealed widespread concern among patients.

Restrictions have made it harder for researchers to access patient records
Restrictions have made it harder for researchers to access patient records

Increasing layers of bureaucracy, based on European laws, have made it harder for researchers to access patient records and have increased the costs of conducting clinical trials.

Researchers have been calling on the government to allow them to use patient-identifiable data without the consent of the patient to help overcome these problems.

But a DoH consultation, involving 1,598 respondents, found that only 46% of patients want to see their data used for research without their consent.

The DoH will now set up a number of pilots in Hampshire, the Isle of Wight, Birmingham and Nottingham, which will explore means of patients opting out of having their records viewed for research purposes. 

A decision on the preferred mechanism will be made by the DoH by June 2010.

Have you registered with us yet?

Register now to enjoy more articles and free email bulletins

Register

Already registered?

Sign in

Follow Us:

Just published

Proportion of NHS GPs trained in EEA stabilises despite Brexit uncertainty

Proportion of NHS GPs trained in EEA stabilises despite Brexit uncertainty

The proportion of NHS GPs trained in the EEA has stabilised after a steady decline...

GPs split on calls to suspend appraisal for duration of pandemic

GPs split on calls to suspend appraisal for duration of pandemic

Senior GPs are divided over calls for appraisal to be halted for the rest of the...

GP fears rising over covert recording of consultations in pandemic

GP fears rising over covert recording of consultations in pandemic

Fears over patients covertly recording consultations have increased among GPs since...

Coronavirus: Key guidance GPs need to know about COVID-19

Coronavirus: Key guidance GPs need to know about COVID-19

GPonline provides an overview of the key guidance relating to coronavirus, including...

Care home vaccination to begin as Scottish minister says Pfizer vaccine packs can be split up

Care home vaccination to begin as Scottish minister says Pfizer vaccine packs can be split up

Vaccination of care home residents against COVID-19 will start on 14 December in...

How will the COVID-19 vaccination programme get underway?

How will the COVID-19 vaccination programme get underway?

Following the MHRA's approval of Pfizer/BioNTech's COVID-19 jab the government has...