NICE U-turn on pulmonary hypertension guidance

NICE is to withdraw its draft guidance for pulmonary hypertension (PH) following an appeal by a patient charity. By Laura James.

The UK Pulmonary Hypertension Association (PHA-UK) was concerned for patients’ lives when NICE published guidance to withdraw a number of medications for PH in March 2008.

The draft guidance stated that intravenous epoprostenol and inhaled iloprost are not recommended in treatment of PH in adults.

While bosentan and sitaxentan are only recommended if sildenafil is contraindicated.

Clinicians from PH specialist centres and friends of the UK PH community from around the world joined the association in creating a petition of 32,000 signatures. This was delivered to Downing Street, which led to parliamentary investigation and Westminster debate.

Iain Armstrong, chairman of PHA-UK, said: ‘In the past decade treatments have transformed the way in which this condition is treated – 75% of patients are now alive two years after diagnosis. I am not being over dramatic when I say that if the preliminary recommendations from NICE had been carried out, it would have been a sentence of death for a significant number of the PH patient community.’

gpletters@haymarket.com

  • Do you welcome the NICE U-turn?

Comment below and tell us what you think

Have you registered with us yet?

Register now to enjoy more articles and free email bulletins

Register

Already registered?

Sign in

Before commenting please read our rules for commenting on articles.

If you see a comment you find offensive, you can flag it as inappropriate. In the top right-hand corner of an individual comment, you will see 'flag as inappropriate'. Clicking this prompts us to review the comment. For further information see our rules for commenting on articles.

comments powered by Disqus